Disclosing Parental HIV Status to Children in China: Lessons Learned Through an Intervention Study

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• 作者：Lin Zhang ; BSN ; RNAuthor Vitae ; Wei-Ti Chen ; PhD ; CNM ; RN ; FAANAuthor Vitae ; Joyce P. Yang ; PhDAuthor Vitae ; Jane M. Simoni ; PhDAuthor Vitae ; Chengshi Shiu ; PhD ; MSWAuthor Vitae ; Meijuan Bao ; BSN ; RNAuthor Vitae ; Jing Zhang ; RNAuthor Vitae ; Meiyan Sun ; MSN ; RNAuthor Vitae ; Yang Qiu ; BSN ; RNAuthor Vitae ; Hongzhou Lu ; PhD ; MD ; ^{luhongzhou@fudan.edu.cn}Author Vitae
• 关键词：children ; China ; disclosure ; HIV ; intervention ; nursing ; parent
• 刊名：Journal of the Association of Nurses in AIDS Care
• 出版年：2017
• 出版时间：January-February 2017
• 年：2017
• 卷：28
• 期：1
• 页码：130-141
• 全文大小：426 K
• 卷排序：28

文摘

For HIV-infected parents, deciding whether and how to disclose their illness to their children is a major stressor. In China, due to significant HIV stigma, disclosure distress is acute. Our objective was to understand HIV-infected parents' concerns regarding disclosure of their HIV status to their children. HIV-infected parents (N = 10) were recruited to attend a three-session nursing intervention. In our post hoc analysis, progress notes from each session were analyzed for themes to illuminate parental decision-making processes. By the end of the intervention, all parents had considered the importance of HIV disclosure and stated that they felt somewhat prepared to disclose. Primary themes included (a) severe stigma experienced by fathers who were sexually active with men, (b) need for both parents to agree on plans for disclosure, and (c) parents' fears about the consequences of disclosure. Parents living with HIV can benefit from nurse-delivered interventions during parental HIV disclosure decision-making.