Time cost of diabetes: Development of a questionnaire to assess time spent on diabetes self-care

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• 作者：Nadja Chernyak^a ; ^{Nadja.Chernyak@uni-duesseldorf.de} ; Fabian Jü ; lich^a ; ^{fabian-juelich@gmx.de} ; Julia Kasperidus^a ; ^{juliakasperidus@gmx.de} ; Astrid Stephan^a ; ^{astrid.stephan@uni-duesseldorf.de} ; Alexander Begun^b ; ^{Alexander.Begun@ddz.uni-duesseldorf.de} ; Matthias Kaltheuner^d ; ^{m.kaltheuner@web.de} ; Andrea Icks^a ; ^b ; ^c ; ^{Andrea.Icks@uni-duesseldorf.de}
• 关键词：Patient time ; Time measurement ; Recall questionnaire ; Self-care ; Diabetes
• 刊名：Journal of Diabetes and its Complications
• 出版年：2017
• 出版时间：January 2017
• 年：2017
• 卷：31
• 期：1
• 页码：260-266
• 全文大小：244 K
• 卷排序：31

文摘

Methods to measure patient time spent on health-related activities are currently not well elaborated or standardized.AimThe purpose of this study was to develop a recall questionnaire measuring patient time devoted to diabetes self-care and to examine its feasibility and validity under field conditions.MethodsThe initial questionnaire was developed on the basis of instruments frequently used to assess self-care behavior in patients with diabetes, evaluated in two focus groups with patients with type 2 diabetes (N = 15) and tested in a random sample of patients with type 2 diabetes (N = 178). To assess the validity of the questionnaire, four hypotheses about expected differences in self-care time across various patient sub-groups were tested.ResultsThe final questionnaire includes thirteen items estimating time spent on regular diabetes-related activities undertaken in the previous seven days. 78% of respondents completed the questionnaire without item non-response or other evident problems. As hypothesized, respondents receiving insulin treatment, those with poor self-rated health and those with diabetes-related emotional distress (PAID-5 score ≥ 8) reported spending more time on diabetes self-care than the rest of the sample. Contrary to our assumption, no differences in time spent on diabetes self-care between employed and retired individuals were detected by the questionnaire.ConclusionThe recall questionnaire measuring patient time devoted to a broad range of regular diabetes self-care activities was developed and its feasibility was proved under field conditions. Ideally, the questionnaire should be further validated within a variety of populations. Exploration of the convergent validity between the recall method and prospective diary may be also useful.