Identifiability and Privacy in Pluripotent Stem Cell Research

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• 作者：Rosario Isasi¹ ; ^{rosario.isasi@mcgill.ca" class="auth_mail} ; Peter W. Andrews² ; Jay M. Baltz³ ; Annelien L. Bredenoord⁴ ; Paul Burton⁵ ; Ing-Ming Chiu⁶ ; Sara Chandros Hull⁷ ; Ji-Won Jung⁸ ; Andreas Kurtz⁹ ; Geoffrey Lomax¹⁰ ; Tenneille Ludwig¹¹ ; Michael McDonald¹² ; Clive Morris¹³ ; Huck Hui Ng¹⁴ ; Heather Rooke¹⁵ ; Alka Sharma¹⁶ ; Glyn N. Stacey¹⁷ ; Clare Williams¹⁸ ; Fanyi Zeng¹⁹ ; Bartha Maria Knoppers¹
• 刊名：Cell Stem Cell
• 出版年：3 April, 2014
• 年：2014
• 卷：14
• 期：4
• 页码：427-430
• 全文大小：127 K

文摘

Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.