Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire

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• 作者：A. Cano-Garcinuñ ; o^a ; ^{acanog@saludcastillayleon.es" class="auth_mail" title="E-mail the corresponding author} ; D. Forns-Serrallonga^b ; I. Mora-Gandarillas^c ; A. Bercedo-Sanz^d ; M.T. Callé ; n-Blecua^e ; J.A. Castillo-Laita^f ; I. Casares-Alonso^g ; E. Tauler-Toro^h ; L.M. Alonso-Bernardoⁱ ; Á ; . Garcí ; a-Merino^j ; I. Moneo-Herná ; ndez^k ; O. Corté ; s-Rico^l ; I. Carvajal-Urueñ ; aⁱ ; J.J. Morell-Bernabé ; ^m ; I. Martí ; n-Ibá ; ñ ; ezⁿ ; C.R. Rodrí ; guez-Ferná ; ndez-Oliva^o ; M.T. Asensi-Monzó ; ^p ; C. Ferná ; ndez-Carazo^q ; J. Murcia-Garcí ; a^r ; C. Durá ; n-Iglesias^s ; J.L. Montó ; n-Á ; lvarez^t ; B. Domí ; nguez-Aurrecoechea^u ; M. Praena-Crespo^v
• 关键词：Asthma ; Quality of life ; Caregivers ; Family impact
• 刊名：Allergologia et Immunopathologia
• 出版年：2016
• 出版时间：March-April 2016
• 年：2016
• 卷：44
• 期：2
• 页码：131-137
• 全文大小：462 K

文摘

Parents’/caregivers’ quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents’/caregivers’ quality of life. This study researches the psychometric properties of IFABI-R.

Methods

Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents’/caregivers’ quality of life were measured: child's asthma control, family functioning, and parents’/caregivers’ perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified.

Results

IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test–retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents’/caregivers’ quality of life.

Conclusions

IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.